Compiling data and creating a new registry for autism CBS News reported that the National Institutes of Health, which operates under the Department of Health and Human Services, announced earlier ...

This week, National Institutes of Health Director Dr. Jay Bhattacharya sent shockwaves through the autism community by announcing the creation of a “disease registry” to track autistic people ...

NEW YORK (PIX11) — An autism registry will not be created, a spokesperson for the United States Department of Health and Human Services told PIX11 News in an email Thursday afternoon. Instead of ...

The Autism Science Foundation said the program raised concerns over privacy and confidentiality. On Friday, April 25, an HHS official told USA TODAY it is not creating such a registry.

Another person wrote, "RFK Jr.'s autism registry is a chilling overreach, tracking private medical data without consent violates HIPAA and echoes eugenics. It's not about health; it's about control.

Overall, I do not see a benefit to the federal government creating an autism registry. Many state registries lack funding, so although they are unethical, the harm they can do is limited.

The Autism Science Foundation said in a statement that the limited details provided has worried families about confidentiality. "The use of registries and registry data in general can be a valuable ...

While HHS is not creating a new registry of Americans with autism, the agency is launching a $50 million research effort to understand the causes of autism spectrum disorder and improve treatments, an ...

The federal health department is not creating a new registry of Americans with autism, a Department of Health and Human Services official said in a written statement Thursday. Instead, the ...

A 2017 Swedish study on autism that included 37,570 sets of twins, 2,642,064 full sibling pairs, and 877,812 half-sibling pairs — 14,516 of whom were diagnosed with a form of autism — found ...