#391 Living with FSGS: A Genetic Kidney Disease Journey | Pranav Garimella
#391 Living with FSGS: A Genetic Kidney Disease Journey | Pranav …
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Emani was diagnosed with FSGS when she was just 17 but continued to struggle to find the right medication to treat her kidney disease. After receiving genetic testing and learning that she has an APOL1 gene variant, Emani was able to get the answers she needed to take the next steps in her kidney disease journey. Learn more about APOL1-mediated kidney disease and join in AMKD Awareness Day on April 30: https://bit.ly/3IgH4sl #APOL1Aware | American Kidney Fund
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Emani was diagnosed with FSGS when she was just 17 but continue…
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When Emani was first diagnosed with genetic FSGS, a form of kidney disease which is caused by a mutation of the APOL1 gene, she wanted to learn as much about the disease as she could to keep living a healthy life. Hear from Emani as she explains how genetic testing helped make her feel much more comfortable with her diagnosis and how she continues to advocate for testing in others: https://bit.ly/3nP2Vk1 Thank you to Vertex for their support in making these APOL1 patient videos and resources pos
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When Emani was first diagnosed with genetic FSGS, a form of kidn…
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#ICYMI Ep. 5 of The Kidney Collective™ is available now! Hear from Robert “Buzz” Buchanan talk about his kidney disease journey, including how he has managed his stage 3 chronic kidney disease for many years and kept it from progressing to kidney failure. 🎧 Watch on YouTube, or listen via Apple Podcasts & Spotify: https://bit.ly/4nHaMtM | American Kidney Fund
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“I want to encourage anyone thinking about home dialysis to reach out and learn more. You can definitely do it. I have no medical background.” Ep. 6 of The Kidney Collective™, “I wish I knew… About transitioning to home dialysis” is available now. 🎧 Listen/watch on Spotify, Apple Podcasts & YouTube: https://bit.ly/4hrUUc7 | American Kidney Fund
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🎧 Episode 3 of The Kidney Collective™ is out now! In “I Wish I Knew… How Kidney Disease Can Impact Your Mental Health”, Emmitt Henderson III, the founder of Male Lupus Warriors NonProfit Corporation and a tireless lupus advocate, shares how he’s managed his mental health through decades of physical challenges, including lupus, kidney failure, a transplant, and even a trek up Mt. Kilimanjaro 🧠🗻 Tune in on Spotify, Apple Podcasts, or watch the full episode on AKF’s YouTube: https://bit.ly/46vSg
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“I would tell them to continue to ask. Also ask for genetic testing because even if it's not genetic, it will trigger the nephrologist, the radiologist, whoever you're seeing at that time to dig a little deeper.” 🎧 Watch Ep. 2 of The Kidney Collective™ on YouTube, or listen via Apple Podcasts & Spotify: https://bit.ly/4geviyT | American Kidney Fund
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